birdshot horus

Association law 1901
for a cure the disease of Birdshot
French society dedicated to the birdshot disease

research on the disease of birdshot ahead in 2018 - a big step forward!

HORUS BIRDSHOT - FIRST INFO!

January 16, 2018-

I was yesterday with the Pr Brézin hospital Cochin (Paris, France) and I am pleased to announce that we have negotiated, with an American company, 300 sequencing of DNA from sick of birdshot!
It's a big step forward, we worked on it for years, and even if we had already started an embryo for research with 4 genetic tests (each test costs about $ 5,000!), we can now say that the birdshot research will actually start this year.
We had for some time a stock of 300 valid samples for this action, but, not the money to finance it. Present, and current 2018, we can already move on the first sequence.
This is a major step forward that offers us prospects for the coming years.
Because Yes, we should not expect results immediately, it is a study that will last months, or even years, but it will be finally launched this year!
I will keep you abreast of the progress of the things as you go along.
Friendships and health to all.


Sylvain cute
Founding President
Horus birdshot Association
disease of birdshot.

horus birdshot Association
Facebook: horus birdshot asso

This site is dedicated to the Birdshot - disease type rétinochoroïdopathie orphan blinding.


This web site is dedicated to the birdshot disease. blinding disease.

Welcome all,.

My name is Sylvain, I am 49 years old and I have the Birdshot type retinochoidite.
It's a disease orphan blinding. In 6 years, I have lost 3/4 of my vision...

I am an officer of companies, painter specialized in portraits and high-level sportsman. This disease has been detected to me during a trip to South Africa and I have no certainty about the future of my eyes.

I created this association in order to help our scientists to discover a treatment to treat this disease. Indeed I wouldn't end up blind without thinking that I have tried everything to cure me.

If progress is being made through our action, then I can say that I have not fully served has nothing in this society.

We already have the support of personalities such as Mr. and Mrs. Sarkozy, Mrs Line Renaud, Mr Gilbert Montagné, Ms. Chantal Ladesou.

We have especially accreditation of hospitals taken through the Pr Brézin hospital Cochin, the Professor Cohen, immulologue, as well as the Pr Levinson of UCLA.

This site and this association has also been created to allow people with this orphan disease answers their questions, they could have names has contact addresses for health care, the names of teachers who are members of honour of this association in the best hospitals of France and the world, the best care as well as all the accessories that can improve their lives (glasses, filter glasses, specific hardware...). It is a disease that can eventually be expensive! Because everything is not refunded.

I hope that we will find as well a solution to our ills...

I encourage you to go on facebook (link alongside) to regroup and discuss


Sylvain
Founding president.

HORUS-BIRDSHOT
Association law 1901
declared in the prefecture
Reims - 22/11/2010
approval No.: W513001893

THE NEWSPAPER ARTICLE THE UNION

THE NEWSPAPER ARTICLE THE UNION

https:www.Facebook.com/rjrradiojeunesreims/videos/1721903291164348/

THE NEWSPAPER ARTICLE THE UNION

NEWS OCTOBER 23, 2015

BIRDSHOT UVEITIS SOCIETY

We will also work with the English association BUS quie takes care of uveitis of birdshot type.

BUS

Welcome to the website for the Birdshot Uveitis Society (BUS), a support group for people with the rare, hard-to-treat, autoimmune, posterior uveitis called Birdshot Chorioretinopathy. We are part of UIG, (the Uveitis Information Group), a registered charity, no. SC028439.

A

Birdshot Uveitis society

HORUS TV

RETROUVEZ LES VIDEOS HORUS BIRDSHOT

la vue c'est la vie

campagne de collecte de dons 2018

current operation in 2018

Together let's make a list of the centres and hospitals who care for birdshots in the world, send us an email with the coordinates of the Center who treats you, cala will help us all and especially the new sick. Thank you. Click on the image.

current operation in 2018

Together let's make a list of the centres and hospitals who care for birdshots in the world, send us an email with the coordinates of the Center who treats you, cala will help us all and especially the new sick. Thank you. Click on the image.

FACEBOOK

ACCESS to THE asso HORUS BIRDSHOT ON FACEBOOK GROUP

facebook page link

FACEBOOK

ACCESS to the asso HORUS BIRDSHOT on FACEBOOK group

facebook page link

THEY ran the diagonal of fools for HORUS BIRDSHOT.

ACCESS to the asso HORUS BIRDSHOT on FACEBOOK group

facebook page link

Twitter

ACCESS to THE asso HORUS BIRDSHOT ON FACEBOOK GROUP

facebook page link

Our partners

Living with uveitis

Hello doctor 10 2016 interview

Partnership

Vous souhaitez nous rejoindre

La création d'évènements sportifs au service de l'association Horus birdshot, et de la recherhe génétique.

Présentation de l'association à la médiathèque Falala de Reims

PRO BASKETBALL GAME HAS REIMS ANTIBES FOR HORUS - APRIL 26, 2016 AT 20:00 A REIMS

CLIQUEZ SUR L'IMAGE

Catalogue HORUS birdshot

Letter of support from the Pr Brézin

APHP COCHIN

PR JACQUES COHEN

Professor of immulologie

November 2014

INFO HORUS BIRDSHOT

J'ETAIS HIER A SURESNES DANS LES LOCAUX DE LA SOCIETE PHILIPS AFIN DE PRÉSENTER NOTRE ASSOCIATION, EN COMPAGNIE DE CYRILLE CLÉMENT (MALADE), MARC OLIVIER FLAISSIER (PHILIPS), AINSI QUE ERIC JOLLAIN (PRESSTASERVICE).
EN EFFET A L'INITIATIVE DE CYRILLE,QUI CONNAISSANT MARC OLIVIER, NOUS AVONS PARTICIPE A UN CONCOURS NATIONAL DES ASSOCIATIONS ORGANISE PAR PHILIPS ET POUR LEQUEL NOUS NOUS SOMMES QUALIFIES POUR LA 'FINALE' NATIONALE - LES PRIX MIS EN JEU PAR PHILIPS VONT DE 1000 A 20000 EUROS - RÉSULTATS EN FIN DE MOIS -
MERCI A LA SOCIETE PHILIPS ET SES ORGANISATRICES
MERCI A MARC OLIVIER FLAISSIER POUR SON IMPLICATION ET SA GENTILLESSE
MERCI A CYRILLE POUR SON INITIATIVE ET SON IMPLICATION
MERCI A ERIC JOLLAIN QUI BIEN QUE NON MALADE S'IMPLIQUE ÉNORMÉMENT DANS L'ASSOCIATION

SYLVAIN

THE COMPANY FILTER PARTNER OF HORUS BIRDSHOT

Filter: company solidarity
1 purchase group €20 paid to HORUS BIRDSHOT
HELP RESEARCH

Filter United Company

LES MASCOTTES DE L'ASSO

NEW

SINCE THIS 26 DECEMBER 2012
YOU CAN MAKE YOUR DONATIONS
THROUGH OUR SECURE PAYPAL ACCOUNT

(Clicking on these icons you will be connected directly to our paypal account and you will no longer need to follow the instructions that are are rated)

THANK YOU FOR YOUR SUPPORT

donate a horus birdshot to support research

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our office

ASSOCIATION
HORUS BIRDSHOT
13 Street burned lands
51390 BEGGARS
such 03.26.02.17.93 - answering machine
email: horusbirdshot@sfr.fr

President:
S.MIGNON

Vice-President:
Valérie MIGNON

Secretary:
Jacques MARIE
Valerie MARIE

Treasurer:
Alain James
Virginia James

contact us

L'UNION journal de juin 2012

Article du Pr Jacques COHEN en collaboration avec HORUS BIRDSHOT-

Mr et Mme SARKOZY

Mme Line RENAUD

Mr Gilbert mountain

document de la préfecture de Reims

inscription à la préfecture de Reims
Identification R.N.A. : W513001893

jourrnal officiel du 11/12/2010
annonce n°937
No de parution : 20100050

Titre du panneau

HORUS BIRDSHOT ASSOCIATION
Association law 1901 to heal
the disease of Birdshot-choroiditis

The Latin appellation of one of the most ancient Egyptian deities, the Falcon God Horus is? r, whose name probably means one who is above or one who is far away. The cult of Horus dates back probably to the prehistory, because the Royal list of the Turin papyrus describes as following of Horus the legendary kings who ruled the Egypt after the reign of the gods (it may be noted here that Horus to the serekh is the oldest Egyptian King who) can be named). At the beginning of the historical period, the sacred Falcon is featured on the the King Narmer palette and therefore it will be constantly associated with the Pharaonic monarchy.
To avenge the death of his father Osiris, Horus confronts his uncle Seth, he wins the fight and received the throne of Egypt in legacy. Where known as the Avenger of his father. It is there even the first of the Pharaohs after his father. However, its legitimacy will be constantly challenged by Seth. Horus is one-eyed: during the fight between Seth, Horus lost his left eye, which is replenished by Thoth. Called Wedjat, eye, that the Egyptians carried as an amulet, possessed magical and prophylactic virtues.

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